I'm having difficulty communicating with the medical staff at Leighton Hospital departments and in the local General Practice. There are too many people involved who all seem to have their own idea of what should be done.
My long term problem has been prostate blockage which means I have to use self-administered catheters to empty my bladder of urine. I was advised in the past not to have the prostate operation because it might result in incontinence. However I came to the conclusion that this was the wrong advice and have asked for several years for the operation to be done. Maybe I could get it dome privately if the NHS will not do it.
Meanwhile stones have developed in the bladder and the Urologists proposed operating to remove them before operating on the prostate. They are now proposing to do an operation to drain off fluid from the kidneys at the back before removing the stones. A further alternative is dialysis which I do not want.
The renal doctor that I have been seeing prescribed some tablets called "Sevelamer Hydrochloride". I only took two tablets but they immediately upset my bowels resulting in constipation and episodes of diarrhoea This took a month or so to recover from.
Most recently the the urologists fitted me with a fixed catheter. This fell out after one day, and they fitted me with another, but this has also come out. Rather that to submit to more of this torture I have reverted to using the self-administered catheters which work perfectly well.
However the GPs keep arranging for extra leg bags and other equipment to be sent to me every week that I cannot use. I'm no longer sure how I am supposed to communicate with the GPs. It is difficult to find the appropriate form on their website and I can't get the NHS "App" to work on my Laptop.
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